Illinois communities mourn the loss of advocate and leader Ann Ford

Recently, the Illinois disability community received the news about the passing of Ann Ford, a former Executive Director of the Illinois Network of Centers for Independent Living and a long time friend to, and leader within the community.

Progress Center mourns her loss and sends our sympathy to friends, families and former colleagues.  Below is a statement from the Illinois Network of Centers for Independent Living about Anne.

Progress Center

 

 

Today the Illinois Network of Centers for Independent Living mourns the loss of Ann Ford, its founding Executive Director. Ann secured a place in history as a trailblazing organizer for people with disabilities who spent her entire adult life fighting for civil rights, integration and inclusion.

Her work to launch and lead the Illinois Network of CILs brought a stronger and more focused voice for the Independent Living movement to lawmakers.

Ann never shied away from telling the truth about the impact of state or federal policies on Illinois’ disability community.

She carried herself with a gentle demeanor undergirded by a tenacious commitment to justice, fairness and knowledge of the struggles faced by people with disabilities worldwide.

Ann had credibility in the corridors of power because she was honest, direct and steeped in personal and professional experience with the Independent Living philosophy.

She fought against harsh changes to rules impacting home caregivers, worked successfully to expand programs to help transition adults from State Operated Developmental Centers, institutions and nursing homes back to the community, and oversaw a statewide drive to bring decent health care to people with disabilities.

Ann was also a beloved mother, sister, doting grandmother and great-grandmother – who left a legacy of respect for all people, public service and humanity.

She received many awards for her advocacy, including most recently from the National Council on Independent Living in 2017. Ann was also prominently featured in Lives Worth Living, a 2011 documentary on the history of the long battle for disability rights in America.

She will be missed but her life will be permanently celebrated by the Illinois Network of CILs, her friends, family and disability advocates across the country.

The Ann Ford Independent Living Professional Development and Education Fund honors her work by providing opportunities for CIL staff in every corner of Illinois to pursue their dreams of assisting people with disabilities to enjoy a full, free life – the mission Ann devoted more than three decades advancing.

At her family’s request, contributions in her memory can be made to Ann Ford’s Fund, 1 W. Old State Capitol Plaza, #501, Springfield IL 62701. More details about her life and work will be shared at www.INCIL.org and funeral arrangements are pending at this time.

 

 Ryan Croke

Executive Director

Illinois Network of CILs

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Image of Flyer for Youth Transition Program. Information on Flyer is in body of web page

New Youth Transition Program

Image of Flyer for Youth Transition Program. Information on Flyer is in body of web page
Image of Flyer for Youth Transition Program. Information on Flyer is in body of web page

Progress Center for Independent Living is excited to announce

A New Youth Transition Program

The Youth Transition Program will equip young people with disabilities with independent living and job readiness skills.

If you are a young person, disabled, and enrolled in an academic program, Progress Center invites you to sign up for a new program designed to empower youth to navigate life after high school and college.

This new program will cover:

*Disability History

*Disability Rights

*Independent Living Skills

*Financial Literacy Skills

*Job Readiness Skills

*And more

Eligible young people must:

*Be between 14 and 21 years old

*Be disabled

*Be enrolled in an academic program

*Not have an active case with the Department of Rehabilitation Services of Illinois

 

For more information, contact:

a. Courtney Harfmann at charfmann@progresscil.org 708-209-1500 ext 26

b. Kim Lidell at Kliddell@progresscil.org or 708-388-5011

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Flyer for the Research Study includes logistics and contact information

Volunteers Needed for Research Study

“Do Peer Health Navigators

Flyer for the Research Study includes logistics and contact information
Flyer for the Research Study includes logistics and contact information

help people with disabilities get better health care?”

The Shirley Ryan Ability Lab, the University of Illinois at Chicago, and Access Living are seeking volunteers for a research study.

To qualify for the study, participants must be:  a person with a physical disability, receive healthcare through Medicaid, be at least 21 years old, in need of help getting health care needs met.

 

 

 

The study includes:

Three 1-hour interviews over the course of one year

Work with Peer Health Navigator for one year

Activities that will take place at UIC at 1919 West Taylor in Chicago

Volunteers will receive $25 for each interview completed.

For more information, contact Susan Magasi at smagas1@uic.edu or 312-996-4603.

 

 

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Image of Supreme Court Building in Washington DC and a fountain outside the building

Disability Rights and the Supreme Court

 

Image of Supreme Court Building in Washington DC and a fountain outside the building
Image of Supreme Court Building in Washington DC

Thank you to Access Living, the Center for Independent Living that serves Chicago, Illinois. Access Living published an Action Alert on August 13, asking members of the community to take action against Judge

Brett Kavanaugh, the nominee to the U.S. Supreme Court.

Below is information taken from the Access Living Action Alert. The information includes a link through which individuals can contact their U.S. Senator with concerns about the Kavanaugh nomination.

One important thing you can do RIGHT NOW is send your U.S. Senator an email about this using this updated action link. Please do this, and also ask all of your friends and colleagues to send emails too.

Disability advocates across the country are saying no to Kavanaugh because the nominee poses a threat in these areas:

 Health care

Access to health care is life-and-death for people with disabilities. That is why the disability community fought so hard when Congress tried to repeal the Affordable Care Act (ACA) and cut Medicaid. But those wins are at risk if Judge Kavanaugh is confirmed to the Supreme Court. In the past, Judge Kavanaugh has said that he thinks parts of the ACA might be illegal. If the Supreme Court decides the ACA is illegal, millions of people will lose access to health care–especially people with disabilities and other pre-existing conditions.

 Self-Determination

People with disabilities are often denied the right to make their own choices. One case in particular shows that Judge Kavanaugh has not respected the rights of people with disabilities.

 DC made two women with intellectual disabilities have abortions, even though the women didn’t want to. DC also made another woman with an intellectual disability have eye surgery. These were not surgeries that they needed to save their lives. In general, DC usually didn’t ask people with disabilities what they wanted before letting doctors operate on them.

 Judge Kavanaugh said that was okay. He said that DC did not need to ask people before letting doctors operate on them. He said that people with intellectual disabilities do not have the right to have any say about their bodies and their health care. He said it was okay for a state to operate on people with intellectual disabilities, even if the person said no. Judge Kavanaugh said it doesn’t matter what people with intellectual disabilities want.

 Because of Judge Kavanaugh’s decision, it took a long time for these women to get justice.

Enforcement of Civil Rights Laws

Congress has passed civil rights laws to help stop discrimination. Judge Kavanaugh has made many decisions that would make these laws more narrow and harder to enforce. His rulings have also made it harder for workers, voters, and people with disabilities to use our rights.

Education

Education is very important to the disability community. IDEA says that all students with disabilities have a right to a Free and Appropriate Education. School voucher programs often make families give up their rights in order to use the voucher. But Judge Kavanaugh has a long history of advocating for vouchers. Advocates are also worried that Judge Kavanaugh’s views on vouchers might hurt how he thinks about the rights of students with disabilities in general.

Presidential Power

The President has to follow all of our laws, even if he doesn’t like a certain law. Judge Kavanaugh has said that the President should get to choose which laws to follow. That is very dangerous. If the President didn’t like an important disability law, like the Affordable Care Act (ACA), Judge Kavanaugh would say that the President could just ignore it. Ignoring the law would hurt people with disabilities.

Thank you again to Amber Smock and to Access Living for developing this material.

 

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Image of Progress Center community members at Progress Center booth at the 2018 AccessChicago Expo

Statement from Progress Center for Independent Living on the 28th Anniversary of the Americans with Disabilities Act

Image of Progress Center community members at Progress Center booth at the 2018 AccessChicago Expo
Image of Progress Center community members at the 2018 AccessChicago Expo

Statement from Progress Center for Independent Living on the 28th Anniversary of the Americans with Disabilities Act

As Progress Center for Independent Living celebrates the 28th anniversary of the Americans with Disabilities Act (ADA) on July 26, 2018, we applaud the members of the disability community who advocated fearlessly to pass the law, which was signed by President George HW Bush on July 26, 1990. Their dedicated work has paved the way in securing equality and inclusion for people with disabilities.

Many physical barriers have been eliminated as a result of the ADA, giving people with disabilities and opportunity to participate in society.  The elimination of physical barriers benefits not only people with disabilities, but all people, creating better access for fathers pushing strollers, travelers carrying luggage, and seniors navigating their communities.

One significant barrier that people with disabilities still encounter, however, is misguided and antiquated attitudes and misconceptions about disability.  Many still believe disability should be pitied, disability should be cured, and that people with disabilities living their lives the way a non-disabled person would is inspirational.  The ADA can’t change these attitudes; as the law moves into its 29th year, it is up to people with disabilities and their allies to continue to educate and change perceptions some people have toward people with disabilities.  People often don’t pay attention to the views of disabled people, but as more and more do, attitudes and perceptions will begin to change.

The Americans with Disabilities Act is law that protects all people with disabilities, no matter their race, ethnicity, gender, or sexuality. Moving forward, disability advocates must also address racism, bigotry and prejudice within our own community.  For too long, the voices and concerns of people of color within the disability community have been silenced or ignored.  For too long, the community has not been a community that is fully inclusive and representative of all its members, and the community has failed to prioritize issues that impact disabled people of color and disabled people who are LGBTQ.

The ADA is a vehicle that drives the spirit of civil rights for people with disabilities.  In order to continue the success of the Americans with Disability Act, all members of the community and members of the non-disabled community must work together and create an inclusive movement that welcomes all members and that supports all members.  Progress Center is ready and Progress Center is excited to play a role in this effort.  People who have experienced or are experiencing discrimination, or who have concerns about issues impacting people with disabilities, are encouraged to call Progress Center at (708) 209-1500.

Progress Center is the Center for Independent Living that serves Suburban Cook County. Progress Center works to provide people with all types of disabilities the tools and resources to be independent in their own homes. Progress Center is one of 22 centers serving Illinois, and one of more than 400 centers in the United States.

For more information, contact Larry Biondi at lbiondi@progresscil.org or Gary Arnold at garnold@progresscil.org

 

 

 

 

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Flyer with voter registration information for Mount Prospect

Voter Registration Drive — Register to Vote at the Mount Prospect Public Library

 

Flyer with voter registration information for Mount Prospect
Flyer with voter registration information for Mount Prospect

The week of July 15 is the third – annual National Disability Voter Registration Week.  The week is coordinated by REV UP to increase the political power of people with disabilities while engaging candidates and the media to recognize the disability community.  REV UP stands for Register Educate Vote!  Use your Power!

The week is designed to encourage people with disabilities and their families, friends, neighbors, co-workers and caretakers to register to vote.

Voting can protect the issues people with disabilities care about, especially at the State and local levels.

The League of Women Voters will be at the Mount Prospect Library during this year’s NDVRW to register voters and answer questions.  Please bring two forms of identification with at least one showing your current address.

 

Sunday, July 15 noon to 4 p.m.

Tuesday, July 17 9 a.m. to noon

Wednesday, July 18 7 to 9 p.m.

 

Mount Prospect Public Library, 10 South Emerson Street, 847-253-5675

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Flyer with information about voter registration event at Arlington Heights LibraryNews

Register to Vote at the Arlington Heights Public Library

 

Flyer with information about voter registration event at Arlington Heights Library
Flyer with information about voter registration event at Arlington Heights Library

The week of July 16 is the third – annual National Disability Voter Registration Week.  The week is coordinated by REV UP to increase the political power of people with disabilities while engaging candidates and the media to recognize the disability community.  REV UP stands for Register Educate Vote!  Use your Power!  The League of Women Voters will be at the library twice during this year’s NDVRW to register voters and answer questions. Drop in!

Monday, July 16, 6 to 8 p.m.

Wednesday, July 18, 11 a.m. to 1 p.m.

Arlington Heights Library.  500 North Dunton Avenue. Arlington Heights Illinois.  847-392-0100.  AHML.info

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Urge Governor Rauner to Sign Bills to Protect Immigrant Rights

The Campaign for a Welcoming Illinois is organizing a Day of Action in support of Illinois Legislation that supports keeping immigrant families together.  Access Living put together an Action Alert to make it easy to contact the Governor.

Below is information from an Action Alert creating by Access Living:

The Campaign for a Welcoming Illinois is asking people to call Governor Rauner’s office today to encourage him to sign bills that keep immigrant families together.  We’d like to ask you to help!

 The bills are:

 SB 34 (VOICES Act): provides some protection options for immigrant crime victims

 SB 35 (Safe Zones Act): prohibits state and local law enforcement from carrying out federal immigration efforts at locations including state-funded schools, state-funded medical treatment and health care facilities, public libraries, facilities operated by the Secretary of State, and state courts

 SB 3488 (No Registry Act): would ban creation of registries based on religion or national origin

 Please call the Governor’ s Springfield office at 217-782-0244, or send him an email.  If you would like to send an email, use this link:   Contact Governor Rauner

The Campaign for a Welcoming Family recommends that callers give a message similar to this:

“Hi.  My name is ___.  I am an Illinois resident. I am contacting you today to ask the governor to sign SB 34, SB 35 and SB 3488 to keep families together and make Illinois welcoming for all.  Thank you!”

Thanks for your work!

Thank you to Access Living for putting together the Take Action Message and thank you to The Campaign for a Welcoming Family for all of your work. At this link is more information about the campaign.

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On the Anniversary of the Olmstead Decision, take action to support options in the community

Image of group of people, all holding signs that read "I am Olmstead."
Image of group of people, all holding signs that read “I am Olmstead.” — Image taken from internet search

On June 22, 1999, the U.S. Supreme Court ruled that the unnecessary institutionalization of people with disabilities is discrimination against people with disabilities. The decision was a victory for the independence and integration of people with disabilities, giving the community a tool to fight for programs and policies that give people with disabilities quality supports and quality, affordable, housing in the community.

Though the Olmstead Ruling was a victory, not all states complied with the decision. In Illinois, three lawsuits were filed against the State of Illinois for its failure to implement Olmstead and give people with disabilities options in the community.  Illinois, and states around the country, has made progress, but legislation is still needed in order to support the implementation and enforcement of the legal decision and the Americans with Disabilities Act integration mandate, which says that services need to be provided in the least restrictive setting.

Today, June 22, on the 19th Anniversary of the Olmstead Decision, the disability community around the country is calling on Congress to support the “Empower Care Act.”  The Empower Care Act would reauthorize a program called “Money Follows the Person,” which between 2007 and 2016, “supported over 75,000 people with disabilities and seniors to move out of nursing homes and into the community nationwide, (from Access Living Action Alert on June 22, 2018).”

Below please find information from the National Council on Independent Living about action you can take to support the Empower Care Act.

Take Action for MFP on the Olmstead Anniversary!

This Thursday, June 22, 2018, is the 19th Anniversary of the Supreme Court’s Olmstead decision cementing the ADA’s integration mandate. To commemorate the day, NCIL is joining other national disability organizations in hosting a National Call-In Day for the EMPOWER Care Act (S. 2227 and H.R. 5306).

Since Money Follows the Person (MFP) began in 2005, over 75,000 disabled people have been liberated from institutions, and CILs have played a critical role in that. But MFP expired on September 30, 2016, and states are starting to scale back and end their programs. In fact, last year was the first time the number of people transitioned into the community declined. We need your advocacy to get the House and Senate to pass the EMPOWER Care Act to reauthorize and fund MFP!

From NCIL Action Alert:

Take Action!

Congress must save and fund MFP, and they need to hear from us! Please urge your Senators and Representative to continue the Money Follows the Person program by co-sponsoring the EMPOWER Care Act!

  • Participate in Thursday’s National Call-In Day! Call your Senators and Representative and urge them to co-sponsor the EMPOWER Care Act! All members of Congress can be reached by calling the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). Find more information, including talking points, at the Facebook event. RSVP and share widely!
  • Use Social Media! Post on Facebook and Tweet at your members of Congress. Find your Members’ Twitter handles and other contact information on Contacting Congress. Make sure to use the hashtag #FundMFP in your posts. You can find more information, including sample Tweets, at the Facebook event.
  • Email your members of Congress! Customize a message to your Members of Congress online.

Continue sharing your stories with us! See our previous alert for more details about the stories we’re looking for. Our original deadline passed, but we’re still looking for your stories about the importance of community living!

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News

“Advocacy is my passion” — An Interview with Linda Marek

 

A resident of Lyons and a member of the Board of Directors, Linda Marek has been a part of the Progress Center community since 2002.  She identifies as an advocate. “I can’t help it,” she said. “When I find things wrong, I advocate.  I advocate every day.”  This included her time living in an institution. Like thousands of other people with disabilities in Illinois, especially before the State began transitioning people to the community through Olmstead consent decrees, Marek was placed unnecessarily in a nursing home.  “People died,” Marek answered when asked about life in the nursing home.  “I’d make friends and then they’d be gone.”  Marek knew she had to get out of the nursing home in order to avoid the same fate. “I am a survivor,” she said.  “But people won’t survive in a nursing home.  That’s why you have to escape.”  Even though the nursing home tried to keep Marek drugged up, she managed to get out of the institution. With the support of Progress Center, she transitioned out of the nursing home in 2002.  She moved into an apartment in Melrose Park. “Now I’m out and aware,” Marek said. She thinks everyone should get out of the nursing home.  “People confined in nursing homes should be out and active in the community with services.”

Advocacy continued outside of the institution. In 2007, she moved to Franklin Park, where she wound up with a landlord who didn’t respond to building issues. The landlord “wasn’t doing repairs,” Marek explained. “I took the landlord to court.”  She won.

Marek was re-introduced to Progress Center several years ago.  In 2012, during a visit to a mental health center in Franklin Park, she saw a flyer about a legislative training at Progress Center.  She joined the class, which was led by Advocacy Coordinator Larry Biondi. “She’s a firecracker,” Biondi said, who refers to Marek as Progress Center’s Public Relations Advocate.

Following the legislative training, Marek signed up for an internship at Progress Center, then joined the Membership and Outreach Committee. On the committee, she served as secretary for three years. According to Marek, her tenure as secretary was good preparation for service on the Board of Directors.  At her first full board meeting, she was appointed “Reporting Secretary.”

In addition to her service on board and committees, Marek got involved in outreach and advocacy efforts, speaking about Progress Center at churches, and participating in actions. In 2015, she protested at Northwestern University, when advocates rebelled against a speaking engagement by Peter Singer, a bioethicist who has argued that severely disabled babies should be killed.

Marek also invited Biondi and Progress Center’s Clark Craig to present at a mental health centers, where they spoke about advocacy issues.  For Marek, spreading the word about disability supports at places like mental health centers is important, especially now.  “People have been going to psychiatric hospital wards more often because they are worried about losing benefits, losing houses,” Marek said.  “They should do something about it.”

Marek has always been one to ‘do something about it,’ but Progress Center has helped when she needed it. “They’ve supported me so much,” Marek said, referring to Progress Center. “I had trouble making decisions on my own. Now I do better.”

In addition to outreach at Mental Health Centers, Marek has also presented about disability issue and Progress Center at town hall meetings, churches, and legislative offices.

Because of Marek, Progress Center is also doing better. In the midst of the Illinois State Budget Impasse, she helped with fundraising, selling Avon Products and stuffed animals, with a percentage of the sales going to Progress Center. “We reciprocate,” Marek said.  “We hold each other up.” This holiday season, she is selling a stuffed animal, a lion named Rory.  “Rory,” Marek says, “Get it?”  Everywhere she has been, and everything she has done, Marek has made a difference for herself, Progress Center and other people with disabilities. It’s hard miss her ROAR!.

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